Experience with Whole Brain Radiation

Mike Graham · 09-12-2018, 11:49 AM

I know this is not the place for this,but maybe it is.
My driver is broken and I am looking for someone with experience.
BJ's cancer has spread to the brain and oncologist is suggesting WBR.
Does anyone have direct experience with this? With the diversity on this forum I am hoping someone knows someone that has gone through this. She wants to go back to Indy next year and stir the pot a bit. Any help would be apreciated.
Mike Graham

Bob Bender · 09-12-2018, 12:17 PM

Never had it on my brain but have had WBR on the body many times. Call if you like 443-309-0365

Carguy49 · 09-12-2018, 12:20 PM

Prayers to you guys. My wife and I never went through this, so no help there. If someone has experience with this, please help Mike and B.J. they deserve and need it. God bless you guys on your continued journey. As I said in our phone conversation, if there is any thing you guys need, please call me and I will do my best. 253-942-9027

Julie Jordan · 09-12-2018, 12:58 PM

I am so very sorry to hear this. I had such a great chat with BJ in Sonoma, such a delightful woman.

You are in Arizona area, correct? I have a friend with cancer, she transferred to Cancer Centers of America down there. The care has been awesome and they have really educated her along the way. They might be a source for questions/opinions? I'm sorry I don't have more to offer than that and my prayers.

Julie

HR9121 · 09-12-2018, 01:05 PM

Hi Mike, I'm a little busy at the moment but I have time to tell you a little about my Granddaddy. He had what is known as Mercal Cell Carcinoma, started about 7 years ago. He went through all the various surgeries to remove as much tissue as they could then he had WBR. That 7 years ago at age 81 and he is still doing pretty good. When this storm is over I can find out more information for you if needed. Good luck and my prayers are with you.

FireSale · 09-12-2018, 01:09 PM

After my Prostate surgery, my cancer guy referred me to his radiation specialist for followup treatment. He was a fountain of information and through the procedures all he described proved to be accurate. It's isn't brain cancer, but my radio therapist handled stuff like BJ's, too. My suggestion is to ask your oncologist for a referral to a radiation specialist and see what that person has to say.

As a survivor I won't pull punches. It's a long journey. My treatments were around 3 consecutive months of 15 min treatments 5 days per week. There were people in the waiting room with head scarfs, so I assume they were being treated for brain cancers. It was all walk-in.

I can't speak to brain cancers, but the treatment progression for Prostate cancer is surgery / radiation / hormone therapy.

Good luck on the Return Road.

4543 · 09-12-2018, 02:25 PM

…mike, No experience with it but here’s some prayers for you guys. Mike & Barbara McMahan 2543 H/SA

GTX JOHN · 09-12-2018, 03:09 PM

No info on treatment............We are praying for both of you.

nhramnl · 09-12-2018, 03:50 PM

No direct experience, but throughout my travels, I've heard a number of endorsements for Cancer Treatment Centers of America. Revolutionary discoveries almost never occur in traditional environments, so working with people who are outside of mainstream medicine might be the answer. God Bless you and best possible wishes for a full recovery.

Mike Graham · 09-12-2018, 07:02 PM

Thanks for the response. After talking to several people that have actually gone through this she has decided to go ahead with the treatment. Racers are truly an extended family.
If you need any information on anything they probably know someone that has experience.

09-12-2018, 11:49 AM	#1
Mike Graham Member Join Date: Jul 2002 Posts: 410 Likes: 1 Liked 341 Times in 67 Posts	Experience with Whole Brain Radiation I know this is not the place for this,but maybe it is. My driver is broken and I am looking for someone with experience. BJ's cancer has spread to the brain and oncologist is suggesting WBR. Does anyone have direct experience with this? With the diversity on this forum I am hoping someone knows someone that has gone through this. She wants to go back to Indy next year and stir the pot a bit. Any help would be apreciated. Mike Graham

09-12-2018, 12:17 PM	#2
Bob Bender VIP Member Join Date: Jan 2009 Location: Maryland Posts: 1,733 Likes: 1,599 Liked 459 Times in 90 Posts	Re: Experience with Whole Brain Radiation Never had it on my brain but have had WBR on the body many times. Call if you like 443-309-0365 __________________ Bob Bender 144 O/SA 2010-2012 National Record Holder

09-12-2018, 12:20 PM	#3
Carguy49 VIP Member Join Date: Aug 2011 Location: Fife, Washington Posts: 1,979 Likes: 2,474 Liked 2,947 Times in 709 Posts	Re: Experience with Whole Brain Radiation Prayers to you guys. My wife and I never went through this, so no help there. If someone has experience with this, please help Mike and B.J. they deserve and need it. God bless you guys on your continued journey. As I said in our phone conversation, if there is any thing you guys need, please call me and I will do my best. 253-942-9027 __________________ Ron McDowell - Did Race Every day is a Gift - Enjoy with family and friends.

09-12-2018, 12:58 PM	#4
Julie Jordan Senior Member Join Date: Dec 2001 Location: Modesto, CA Posts: 639 Likes: 90 Liked 548 Times in 94 Posts	Re: Experience with Whole Brain Radiation I am so very sorry to hear this. I had such a great chat with BJ in Sonoma, such a delightful woman. You are in Arizona area, correct? I have a friend with cancer, she transferred to Cancer Centers of America down there. The care has been awesome and they have really educated her along the way. They might be a source for questions/opinions? I'm sorry I don't have more to offer than that and my prayers. Julie __________________ Julie Jordan 7549 STK

09-12-2018, 01:05 PM	#5
HR9121 Live Reporter Join Date: Jan 2011 Location: New Bern, NC Posts: 3,467 Likes: 146 Liked 3,363 Times in 731 Posts	Re: Experience with Whole Brain Radiation Hi Mike, I'm a little busy at the moment but I have time to tell you a little about my Granddaddy. He had what is known as Mercal Cell Carcinoma, started about 7 years ago. He went through all the various surgeries to remove as much tissue as they could then he had WBR. That 7 years ago at age 81 and he is still doing pretty good. When this storm is over I can find out more information for you if needed. Good luck and my prayers are with you. __________________ James Williamson W200 J/SA. SS/JA

09-12-2018, 01:09 PM	#6
FireSale VIP Member Join Date: Feb 2014 Location: Lakewood Washington Posts: 1,407 Likes: 29 Liked 237 Times in 126 Posts	Re: Experience with Whole Brain Radiation After my Prostate surgery, my cancer guy referred me to his radiation specialist for followup treatment. He was a fountain of information and through the procedures all he described proved to be accurate. It's isn't brain cancer, but my radio therapist handled stuff like BJ's, too. My suggestion is to ask your oncologist for a referral to a radiation specialist and see what that person has to say. As a survivor I won't pull punches. It's a long journey. My treatments were around 3 consecutive months of 15 min treatments 5 days per week. There were people in the waiting room with head scarfs, so I assume they were being treated for brain cancers. It was all walk-in. I can't speak to brain cancers, but the treatment progression for Prostate cancer is surgery / radiation / hormone therapy. Good luck on the Return Road. __________________ Dale Shearon 68 Mustang 6394 Last edited by FireSale; 09-12-2018 at 01:13 PM.

09-12-2018, 02:25 PM	#7
4543 Senior Member Join Date: Apr 2005 Location: Texas Posts: 642 Likes: 63 Liked 641 Times in 140 Posts	Re: Experience with Whole Brain Radiation …mike, No experience with it but here’s some prayers for you guys. Mike & Barbara McMahan 2543 H/SA

09-12-2018, 03:09 PM	#8
GTX JOHN VIP Member Join Date: Jun 2009 Location: Boulder City, Nevada 89005 Posts: 2,733 Likes: 2,802 Liked 2,486 Times in 697 Posts	Re: Experience with Whole Brain Radiation No info on treatment............We are praying for both of you. __________________ John Irving 741 Stock 741 Super Stock

09-12-2018, 03:50 PM	#9
nhramnl Senior Member Join Date: Feb 2010 Posts: 507 Likes: 8 Liked 358 Times in 83 Posts	Re: Experience with Whole Brain Radiation No direct experience, but throughout my travels, I've heard a number of endorsements for Cancer Treatment Centers of America. Revolutionary discoveries almost never occur in traditional environments, so working with people who are outside of mainstream medicine might be the answer. God Bless you and best possible wishes for a full recovery.

09-12-2018, 07:02 PM	#10
Mike Graham Member Join Date: Jul 2002 Posts: 410 Likes: 1 Liked 341 Times in 67 Posts	Re: Experience with Whole Brain Radiation Thanks for the response. After talking to several people that have actually gone through this she has decided to go ahead with the treatment. Racers are truly an extended family. If you need any information on anything they probably know someone that has experience.